HDSA Center of Excellence

The HDSA Center of Excellence at Rowan University School of Medicine and Rutgers University RWJ Medical School represents a coordinated regional effort to deliver clinical care, resources and support for people affected by Huntington's disease (HD). The center operates under the Huntington's Disease Society of America (HDSA) network of Centers of Excellence and integrates clinical specialties and social work support to provide access to local medical, legal, social and therapeutic resources for individuals and families living with HD.

As part of the HDSA Centers of Excellence system, the Rowan-Rutgers center links clinical services with broader HDSA initiatives that encompass education, advocacy, and research. HDSA's long-standing commitment to research is noted on the organization's site, which reports that since 1999 it has committed more than $20 million to research aimed at finding effective treatments to slow HD. The center's placement within this national framework emphasizes both patient care and the connection to research opportunities, including participation in clinical trials, online surveys, registries such as Enroll-HD, and HDSA resources like HD Trialfinder. The center's public-facing information highlights pathways for patients and families to locate support, chapters, support groups, social workers and specialized centers, as well as access to symptom management, genetic testing guidance, disability resources, long-term care information and professional education for healthcare providers.

The center's multidisciplinary leadership reflects an emphasis on neurology and psychiatry collaboration, ensuring attention to the motor, cognitive, and behavioral symptoms that characterize Huntington's disease across its early, middle, and late stages. Social work integration is explicitly named, offering a direct point of contact for navigating services, scheduling, and community resources. The HDSA affiliation further situates the center within a national organization that offers helplines, educational content (including CME and professional resources), webinars and public-facing education about HD symptoms, genetics, and care considerations.